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Chronic Illness Information Resources

For Primary Care Providers

I. Statistics
II. Clinical Resources
III. Psychosocial and Functional Issues
IV. Disability
V. Health Insurance and Financial Issues
VI. Advocacy
VII. Local Resources
VIII. Disease-specific Information

Please send any comments concerning this page to Biomedical Libraries Reference.


I.  Statistics

National Center for Health Statistics (from the Centers for Disease Control)
The nation's principal health statistics agency, from the Centers for Disease Control (CDC). Full-text of many of their publications is available on the Web, including Vital and Health Statistics series, Healthy People 2000, Ambulatory Health Care Data, Vital Statistics of the United States, National Vital Statistics Report, and Life Tables. Also includes information about CDC-related programs and public health bills specific to chronic disease.

II.  Clinical Resources

UpToDate
Expert-authored, peer-reviewed medical information resource for health care professionals, designed to address health-related inquiry at the point of care. Includes information and resources in areas such as screening, treatment, and counseling options. (Access Restrictions: UpToDate is licensed for on-site use only at Dartmouth College, Dartmouth Medical School, and the Dartmouth-Hitchcock Medical Center. Remote access is not permitted.)

E-Medicine
Offers authored, peer-reviewed topic reviews of diseases for the health care professional. Features up-to-date, searchable, peer-reviewed medical journals, online physician reference textbooks, and a full-text article database.

WebMD
Provides services that help physicians, consumers, providers and health plans navigate the healthcare system. Includes components for the consumer (WebMD Health) and for the health care professional (Medscape from WebMD).

ImagesMD
A database which compiles over 48,000 high-quality images spanning all of internal medicine, all derived from Current Medicine’s series of illustrated atlases. Each image is accompanied by detailed and informative text written by over 2,000 contributing experts.
(Licensed for use only at Dartmouth College and DHMC/Lebanon).

Audio-Digest Series
Produced by the Audio-Digest Foundation. A convenient way to obtain continuing medical education and to learn about a specific topic (including specific chronic diseases/conditions). Tapes are available from the Matthews-Fuller Library.

Lab Tests Online
Designed for health care professionals, patients, and caregivers better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases. The site is the product of a collaboration of professional societies representing the lab community.

Practice Guidelines

National Guidelines Clearinghouse
A comprehensive database of evidence-based clinical practice guidelines and related documents produced by the Agency for Healthcare Research and Quality, in partnership with the American Medical Association and the American Associate of Health Plans.

Evidence-Based Medicine

Cochrane Database of Systematic Reviews
Published by the International Cochrane Collaboration, consists of detailed, structured topic reviews of hundreds of articles. Teams of experts complete comprehensive literature reviews, evaluate the literature, and present summaries of the findings of the best studies.

Drug Information

See Biomedical Libraries Subject Guide, Drug Information Resources for Clinicians Includes links to and descriptions of drug information resources including Clinical Pharmacology Online, PDR.Net, Therapeutics Letter, as well as information about Internet pharmacies and comparative pricing, PDA resources, and clinical trials for drugs.

Alternative and Complementary Medicine

See Biomedical Libraries Subject Guide, Alternative and Complementary Medicine Resources. Includes links to and descriptions of various online resources, including the National Institutes of Health (NIH) National Center for Complementary and Alternative Medicine and HerbMed.

Clinical Trials

ClinicalTrials.gov
A service of the National Institutes of Health; developed by the National Library of Medicine. Provides patients, family members and members of the public current information about clinical research studies.

CenterWatch - Clinical Trials Listing Service
A listing of industry-sponsored clinical trials actively recruiting patients. You can use this listing to search for clinical trials by therapeutic area and geographic region. You may also use the Advanced Search feature to locate clinical trials on a specific medical condition.

III.  Psychosocial and Functional Issues

PsycINFO
A database produced by the American Psychological Association. Covers an array of disciplines related to psychology such as psychiatry, education, business, medicine, nursing, pharmacology, law, linguistics, and social work. Includes links to full text journal articles, if available.

MEDLINE
The National Library of Medicine's (NLM) premier bibliographic database covering the fields of medicine, nursing, dentistry, veterinary medicine, the health care system and the preclinical sciences. MEDLINE contains bibliographic citations and abstracts from 1966 to present from over 3,900 journal titles published in the United States and 70 foreign countries. About 75% of the indexed papers are in English. To search for psychosocial-related information, combine search term (e.g., specific chronic disease or condition) with Medical Subject Headings such as "Quality of Life." Also try applying "psychology" as a subheading.

ABLEDATA
A federally funded project whose primary mission is to provide information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the United States. Sponsored by the National Institute on Disability and Rehabilitation Research (NIDRR)

IV.  Disability

Americans with Disabilities Act (ADA)
From the U.S. Department of Justice, this site provides access to information covering federal, state, and local resources and regulations, ADA publications (including "Guide to Disability Rights Laws").

DisabilityInfo.gov
Links to federal web sites and other web sites with disability-related information, including employment, education, housing, transportation, health, community life, and civil rights.

Office of Disability Employment Policy (ODEP)/U.S. Department of Labor
Provides leadership to increase employment opportunities for adults and youth with disabilities. ODEP is a federal agency in the Department of Labor. Its customers include: individuals with disabilities and their families, private employers and their employees, federal, state, and local government agencies, educational and training institutions, disability advocates, providers of services and government employers.

V.  Health Insurance and Financial Issues

DHMC/DMS Cardiology Prescription Drug Survival Guide
A locally produced guide (developed by Jon Wahrenberger, M.D.) about obtaining medications in a safe and cost-effective manner.

NeedyMeds.com
A non-profit corporation, this source provides information about patient assistance programs and other programs that help people obtain health supplies and equipment.

State Children’s Health Insurance Program (SCHIP)
Enacted by the U.S. Congress in August 1997, the state Children's Health Insurance Program (CHIP) is designed primarily to help children in working families with incomes too high to qualify for Medicaid but too low to afford private family coverage. All states and the District of Columbia offer health coverage through CHIP and Medicaid

VI.  Advocacy

Patient Advocate Foundation
A national non-profit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys. Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.

Social Security Online
The official site of the Social Security Administration. Includes a section called, "Advocates," which contains information that can help advocates assist people with disabilities who want to work.

VII.  Local Resources

Chronic Conditions Information Network (CCIN)
To assist those living in New Hampshire and Vermont who are affected by chronic illness/injury, CCIN has developed this comprehensive website to address the multiple problems and issues that can occur.

New Hampshire Vocational Rehabilitation (NHVR)
An agency that helps persons with disabilities help themselves to get a job, keep the job, and develop a life time career. NHVR has seven regional offices throughout the state designed to assist persons who have physical, mental, emotional and learning disabilities. May require patient’s current medical information, documenting their disability, to determine eligibility for VR service.

NH Chronic Disease Information Service (CDIS)
The New Hampshire Chronic Disease Information Service is a program of the NH Area Health Education Center (AHEC), offered in collaboration with the Chronic Conditions Information Network (CCIN). This service provides links to resources by type of service and region of the state, and for several specific chronic conditions. Includes a PDF booklet titled "How to Get What You Need in New Hampshire: A Resource Guide for Those Living with a Chronic or Life-threatening Condition.", which can be downloaded for free.

New Hampshire General Court
To find out about legislation related to the issue; to influence pending legislation (testify, attending hearings, etc.)

VIII.  Disease-specific Information

MEDLINEplus
A service of the National Library of Medicine and the National Institutes of Health. Provides authoritative, up to date, and extensive information from the National Institutes of Health and other sources on over 600 diseases and conditions. There are also lists of hospitals and physicians, a medical encyclopedia and a medical dictionary, health information in Spanish, extensive information on prescription and nonprescription drugs, health information from the media, and links to thousands of clinical trials. MEDLINEplus is updated daily

National Organization for Rare Disorders A federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Includes an index of rare diseases (including many chronic diseases), a rare disease database, an organizational database, and an "orphan drug" designation database.

Nervous System Disorders

Epilepsy Foundation
The Epilepsy Foundation is a national, charitable organization, founded in 1968 as the Epilepsy Foundation of America. The only such organization wholly dedicated to the welfare of people with epilepsy, our mission is simple: to work for children and adults affected by seizures through research, education, advocacy and service.

American Epilepsy Society
Promotes research and education for professionals dedicated to the prevention, treatment and cure of Epilepsy. Includes articles of interest to patients, physicians, and researchers.

National Multiple Sclerosis Society
The mission of the National Multiple Sclerosis Society is to end the devastating effects of MS. The Society and its network of chapters nationwide promote research, educate, advocate on critical issues, and organize a wide range of programs- including support for the newly diagnosed and those living with MS over time.

ALS Association
The mission of The ALS Association is to find a cure for and improve living with ALS. The ALS Association seeks to promote awareness and understanding of ALS and the work of The ALS Association by providing up-to-date information and education materials to the ALS community, including ALS patients and families, caregivers, researchers and members in the health care fields.

National Institute of Neurological Disorders and Stroke
Part of the National Institutes of Health. Conducts, fosters, coordinates, and guides research on the causes, prevention, diagnosis, and treatment of neurological disorders and stroke, and supports basic research in related scientific areas.

United Cerebral Palsy (UCP)
A leading source of information on cerebral palsy and is an advocate for the rights of persons with any disability. UCP's mission is to advance the independence, productivity and full citizenship of people with cerebral palsy and other disabilities.

Hearing Disorders

American Speech-Language-Hearing Association (ASHA)
ASHA is the professional, scientific, and credentialing association for more than 103,000 audiologists, speech-language pathologists, and speech, language, and hearing scientists. ASHA's mission is to ensure that all people with speech, language, and hearing disorders have access to quality services to help them communicate more effectively.

The Listen Up Web
Includes resources for the deaf and hard of hearing. This web site gathers information and developing products geared to the special needs of hearing impaired children and their families.

Visual Disorders and Blindness

Glaucoma Research Foundation
This foundation is a national non- profit organization dedicated to the protection of sight. The web site includes a FAQ on glaucoma section, access to a free newsletter and fact sheets, as well as an interactive section.

Macular Degeneration Foundation
Dedicated to serving the interests of those affected by Macular Degeneration and related low vision conditions. Includes latest news and research information, a glossary, an eye test, and international resources.

National Eye Institute
The National Eye Institute (NEI) conducts and supports research that helps prevent and treat eye diseases and other disorders of vision. This research leads to sight-saving treatments, reduces visual impairment and blindness, and improves the quality of life for people of all ages.

Cancers

Biomedical Libraries Subject Guide to Cancer Information

Endocrine Disorders

American Diabetes Association
Provides information in support of their mission - "to prevent and cure diabetes and to improve the lives of all people affected by diabetes." Includes access to free weekly E-newsletter.

Juvenile Diabetes Research Foundation International
Provides information about research, daily care and treatment, coping with emotional demands, and helping delay the onset of complications. Includes publications and information about recent legislative actions.

National Institute of Diabetes and Digestive
and Kidney Diseases

From the National Institutes of Health. Includes diabetes topics, including easy-to-read publications, Spanish-language publications, and statistics.

National Graves' Disease Foundation
Provides links to information for professionals, news, and support groups.

The American Thyroid Association
An association of physicians and scientists dedicated to research and treatment of thyroid diseases by promoting excellence and innovation in clinical care, research, education, and public policy.

Blood and Immune System Disorders

National Heart, Lung, and Blood Institute (NHLBI)
NHLBI plans, conducts, fosters, and supports basic research, clinical investigations and trials, observational studies, and demonstration and education projects. Research is related to the causes, prevention, diagnosis, and treatment of heart, blood vessel, lung, and blood diseases; and sleep disorders. The NHLBI plans and directs research in development and evaluation of interventions and devices related to prevention, treatment, and rehabilitation of patients suffering from such diseases and disorders. It also supports research on clinical use of blood and all aspects of the management of blood resources.

National Hemophilia Foundation
The mission of the National Hemophilia Foundation is education, research and advocacy on behalf of people with bleeding disorders. Includes news, medical advisories, legislative updates, links to related web-based resources, advocacy, and treatment guidelines.

Leukemia and Lymphoma Society
Dedicated to fighting blood-related cancers. Includes patient services, disease information, medical news, advocacy, professional education

Musculoskeletal and Connective Tissue Disorders

National Institute of Arthritis and Musculoskeletal
and Skin Diseases

The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.

Arthritis Foundation
The Arthritis Foundation supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research. This web site includes a disease center, drug guide, diet and nutrition information, alternative therapies, sports injury prevention, and lifestyle issues for children and adults.

Lupus Foundation of America, Inc.
Includes information and publications about lupus facts, support information (including "find a doctor," support groups, local chapters), breaking news, research updates, and legislative action.

Cardiovascular Disorders

American Heart Association
From the national voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke. Is a general source for all matters of the heart, and related disease conditions such as stroke, diabetes, and cholesterol. Includes information about warning signs, a heart and stroke encyclopedia, publications and resources, and advocacy. Also offers health tools, including Risk Assessment, Treatment Decision Help, Exercise Diary, and Body Mass Index Calculator.

National Heart, Lung, and Blood Institute
(National Institutes of Health)

From the institute which provides oversight of a national program in diseases of the heart, blood vessels, lung, and blood; blood resources; and sleep disorders. The site includes links to cardiovascular information for patients and the general public. Includes "Check Your Physical Activity Heart Disease I.Q." which tests how much you know about how physical activity affects your heart.

Gastrointestinal Disorders

National Institute of Diabetes Digestive and Kidney Disorders
This institute's mission encompass some of the most common, severe, and disabling conditions affecting Americans today: endocrine and metabolic diseases, digestive diseases, kidney and urologic diseases, and blood diseases.

Respiratory Disorders

American Academy of Allergy, Asthma and Immunology
Includes information for patients and consumers, pollen counts, allergy reports, information for professionals, and news and research information.

American Lung Association
Dedicated to fighting lung disease in all its forms, with special emphasis on asthma, tobacco control and environmental health. This web site includes a new index area dedicated to help with treatment decisions, referred to as lung health "profilers" that are helpful to patients and physicians. Also includes information about local chapters and support services, data and statistics, advocacy, school programs, and a section on "Living with Lung Disease."

Cystic Fibrosis Foundation
Includes information about local chapters and care centers, research and clinical trials, legislative action, "living with CF," and news information.

Gastrointestinal Disorders

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Includes information pertaining to digestive disorders, including hepatitis, heartburn, ulcers, constipation, and weight loss control. Provides links to the "National Digestive Diseases Information Clearinghouse and directories of digestive diseases organizations for patients and for professionals.

American Liver Foundation
Provides links to information about research and advocacy, clinical trials, local chapters, support groups, recent news, articles, and general information about liver diseases, including Hepatitis C.

Crohn's and Colitis Foundation of America
Offers news updates, a medical library, research information, educational brochures, Inflammatory Bowel Disease clinical trials, advocacy, and legislative affairs.

Mental Disorders

The National Institutes of Mental Health
Includes brochures and information sheets, reports, press releases, fact sheets, and other educational materials on a variety of mental disorders, including autism, anxiety, depression, schizophrenia, and post-traumatic stress. Also includes news and information for the professional.

American Psychiatric Association (APA)
Includes access to the APA Fact Sheet Series, choosing a psychiatrist, information for families and children, psychiatric medications, mental illness coverage issues, community activities and outreach, advocacy, and links to a variety of other mental health related resources.

Last Updated: 10/2/14