Testing resources on the web

• Understanding Genetic Testing A joint project from the National Cancer Institute and The National Center for Human Genome Research, which provides basic information on gene testing and gene concepts, including a list of frequently asked questions.

• Gene Tests From the National Library of Medicine at the NIH and the department of Maternal and Child Health of HRSA, a site that includes definitions of genetic testing terms, issues concerning genetic testing, case examples, clinical testing sites, laboratory tests, and the HELIX database of genetic tests. (To access this site, you will need to register by entering a log-on name and password.)

• Genetic Testing From the Joseph and Rose Kennedy Institute of Ethics at Georgetown University, a paper on the ethical considerations of genetic testing, including a comprehensive list of references.

• Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents A comprehensive report from the American Society of Human Genetics/American College of Medical Genetics

• Promoting Safe and Effective Genetic Testing in the U.S. Results on the Task Force on Genetic Testing conducted by the NIH.

• Cancer Risk Assessment/Genetic Counseling The private site of a medical geneticist that offers services and information about hereditary and non-hereditary cancer risks, includes myths of cancer risks.

• New England Regional Genetics Group Provides listings of state genetics programs and clinics, as well as other resource material on genetic testing.

• New England Newborn Screening Program Operated by the UMass Medical School, a web-site of newborn genetic tests currently offered and under research. Gives New Hampshire contacts in newborn testing.

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