MedWeb Plus: Encyclopedia-like list of topics related to genetics, from genetic disorders to privacy issues and new research. By clicking on the subtopic, you will receive a links to relevant websites.
Human Genome Project: This site has it all! Everything you want to know about the HGP.
The National Human Genome Research Institute: This institute directs the Human Genome Project. A comprehensive site, with good coverage of social/ethical implications and policy issues, and a terrific glossary.
Cystic Fibrosis Foundation: Provides information on research and clinical trials regarding CF, as well as a state by state listing of care centers supported/accredited by the CF Foundation (including gene therapy centers.)
Cystic Fibrosis Research at Dartmouth Medical School: Ongoing research into CF patient care and education, CF clinical research, CF basic science research, and associated links.
Muscular Dystrophy Association: Offers information on the disease, research, and community programs.
NH Chapter of the March of Dimes: Information on events, advocacy, and a good prenatal health section.
Disability - The NH Challenge: The New Hampshire Challenge is a quarterly publication which disseminates information on disabilities issues from a family perspective.
The African-American Community Health Network (AACHN) is the only African-American owned and operated non-profit health service and development corporation in Washington, their mission is to improve the healthcare status of the underserved; especially African-Americans.
Annotated bibliographies on the NCEMCH website include documents that focus on cultural issues in healthcare. All documents are saved in PDF format that can be viewed in Adobe Acrobat Reader.
The Association of Asian Pacific Community Health Organizations (AAPCHO) provides a centralized location to find current information about Asian American and Pacific Islander (AAPI) healthcare status and issues affecting AAPI health.
The Cross Cultural Health Care Program (CCHCP) serves as a bridge between communities and healthcare institutions to ensure full access to quality healthcare that is culturally and linguistically appropriate.
Diversity Rx promotes language and cultural competence to improve the quality of healthcare for minority, immigrant and ethnically diverse communities.
The EthnoMed website contains information about cultural beliefs, medical issues and other related issues pertinent to the healthcare of recent immigrants.
The Hispanic Educational Genome Project primary objectives are to develop, implement and distribute culturally competent, linguistically appropriate and relevant curricula that leads to Hispanic student and family interactions regarding the science, ethical, legal and social issues of the Human Genome Project.
IDEXMEDICO is a bilingual medical information service provided free-of-charge to healthcare professionals and the general public.
The Indian Health Service (IHS) aims to raise the the physical, mental, social, and spiritual health of American Indians and Alaska Natives to the highest level.
JAMARDA Resources specializes in cultural diversity training for healthcare providers. They strive to increase health care workers' understanding of various cultures, ethnic groups and religions through consulting, diversity training, workshops and continuing education.
Native American Health History is a searchable database of over 3,000 health related articles and literature concerning Native Americans.
The Native American Resources page on the Family Village website provides links and contact information for organizations that focus on Native American health issues.
New York Online Access to Health (NOAH) seeks to provide high quality full-text health information for consumers, in both English and Spanish, that is accurate, timely, relevant and unbiased.
Office of Minority Health serves as a national resource and referral service on minority health issues. The center collects and distributes information on a wide variety of health topics, including substance abuse, cancer, heart disease, violence, diabetes, HIV/AIDS and infant mortality.
Cancer Risk Assessment and Counseling Website offers services and information for health professionals and concerned individuals about hereditary and non-hereditary cancer risks.
FDA Certified Mammography Facilities provides a listing by state and zip code of all mammography facilities certified by the Food and Drug Administration (FDA) as meeting baseline quality standards for equipment, personnel and practices under the Mammography Quality Standards Act of 1992 (MQSA).
Guide to Internet Resources for Cancer contains over 50 pages of links to cancer related information. Many sites contain information for both the public and for health professionals.
National Alliance of Breast Cancer Organizations is the leading non-profit central resource for information about breast cancer and a network of more than 370 organizations that provide detection, treatment and care to thousands of American women. This site will provide you with current information about breast cancer, updates on breast cancer-related events and activities and links to other Internet sites.
The National Breast and Cervical Cancer Early Detection Program is a national program, within the Center for Disease Control, to ensure that women, for whom screening is recommended, receive regular screenings for breast and cervical cancer, prompt follow-up if necessary and assurance that the tests are performed in accordance with current recommendations.
The National Cancer Institute website includes a wide range of accurate, credible cancer information. CancerNet information is reviewed regularly by oncology experts and draws on the latest research.
LookSmart provides a list of hot links to the best genetic sites on the web.
The Children's Health Information Network provides information and resources to families of children with congenital and acquired heart disease, adults with CHD and their providers.
Chromosome Deletion Outreach is an organization whose membership consists of individuals, families and professionals seeking information about a range of chromosome disorders.
The Family Village is a global community that integrates information, resources and communication opportunities on the Internet for persons with mental retardation and other disabilities, their families and those who provide them with services and supports.
GeneClinics is a medical knowledge base consisting of short descriptions of specific genetic disorders and information on the role of genetic testing in the diagnosis, management, and genetic counseling of patients with these conditions.
A Gene Map of the Human Genome from Science Magazine and the National Center for Biotechnology Information (NCBI).
The Genetic Drift is published semiannually by a MSRGSN committee. Each issue is generally focused on a single topic.
The Genetic Interest Group is a national alliance of organizations with membership of over 120 supporting children, families and individuals affected by genetic disorders.
The Genetic Syndrome Support Groups Online website provides links to genetic support groups with organizational web pages.
The Genetics Education Center at the University of Kansas offers resources for educators interested in human genetics. The website includes links to useful information concerning specific genetic conditions, the Human Genome Project and much more.
HOST is a nonprofit consortium created to promote the development of information technology to improve healthcare.
HuGE Net represents the collaboration of individuals and organizations from diverse backgrounds who are committed to the development and dissemination of population-based human genome epidemiologic information.
HuGEM II provides education for healthcare professionals on the Human Genome Project and associated ethical, legal, and social issues. It is a collaborative project between Georgetown University Child Development Center and the Genetic Alliance.
The Karolinski Institute Library allows lay persons, healthcare professionals and researchers to search the collection of links for diseases, disorders and related-topic resources.
The March of Dimes is an information source about how to have a healthy baby and what to do if there is a problem.
MEDLINE, a search service of the National Medical Library, allows online access to 9 million citations.
The Metabolic Diseases resource link page at British Columbia Children's Hospital includes links useful to consumers and professionals.
Mothers United for Moral Support (MUMS) is a National Parent to Parent Network helps parents who have a child with a rare diagnosis make connections with other parents in similar situations.
National Organizations of Rare Disorders (NORD) is a federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities.
Newsweek's online health guide reviews websites that focus on genetics, including the Genetic Alliance.
Office of Genetics and Disease Prevention at the Centers for Disease Control and Prevention (CDC) provides access to current information on human genetic research and the Human Genome Project's impact on epidemiology, public health, disease prevention, and health promotion.
Office of Rare Disease's (ORD), at the National Institutes of Health,offers information about more than 6,000 rare diseases, current research and clinical trials and support groups.
Online Mendelian Inheritance in Man (OMIM) is a catalog of human genes and genetic disorders authored and edited by Dr. Victor A. McKusick and his colleagues at Johns Hopkins and elsewhere, and developed for the World Wide Web by the National Center for Biotechnology Information (NCBI)
PEDINFO: An Index of the Pediatric Internet is dedicated to the dissemination of on-line information for pediatricians and others interested in child health. A list of current resources on congenital syndromes, congenital malformations and inborn errors of metabolism is available.
The Rare Genetic Disease in Children is a source of information on rare genetic diseases affecting children.
The Understanding Gene Testing booklet, produced by the National Cancer Institute, presents key concepts and issues relevant to the techniques, potential risks and benefits of attempts linking genetic markers with disease.
The Association for the Care of Children's Health (ACCH) is an organization of healthcare providers, family members, facility designers, teachers, child life specialists, chaplains, hospitals and other individuals and organizations committed to improving the quality of care for children and their families through education, dissemination of resources, research and advocacy.
The Center for Patient Advocacy is an organization founded to represent the interests of patients nationwide and dedicated to ensuring that all Americans have timely access to the highest quality medical care in the world.
The Children's Defense Fund provides a strong and effective voice for all the children of America who cannot vote, lobby or speak for themselves.
Families USA is an organization dedicated to the attainment of high-quality, affordable health and long-term care for all Americans.
Managed Care Central, from Families USA, is a central point of reference for consumers on issues surrounding managed care.
The National Association of Insurance Commissioners (NAIC) is a trade association for insurance regulators from the 50 states, the District of Columbia and the four U.S. territories.
The Health Care Financing Administration (HCFA) is the federal agency that administers the Medicare, Medicaid and Child Health Insurance Programs.
The Social Security Administration (SSA) can help consumers understand the benefits and financing of the program.
Medicaid is a Federal-State health insurance program for qualified people of low-income and special healthcare needs.
The Medicaid Clearinghouse, from Families USA, educates, informs and empowers those committed to making the Medicaid program as effective as possible and to protecting Medicaid benefits for the people who count on it.
The American Board of Genetic Counseling accredits genetic counseling training programs and prepares and administers examinations to certify individuals who provide services in the medical genetics specialty of genetic counseling.
The Genetics Education Center website includes information on educational requirements and training programs to pursue a career in human genetics.
National Society of Genetic Counselors provides information about genetic counseling as a profession.
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